LGBTQIA+ Perinatal Research

A Priority Setting Partnership (PSP) for LGBTQIA+ people on pregnancy, birth, infant feeding and the first year after birth

In partnership with the James Lind Alliance, LGBT Mummies, LGBT Foundation, Transparent Change, UK Mutual Aid, the University of Oxford National Perinatal Epidemiology Unit, The University of Oxford Knowledge Exchange Seed Fund and the British Academy's BA/Leverhulme Small Research Grants Programme  


What is a Priority Setting Partnership (PSP)?

Priority Setting Partnerships (PSPs) identify and prioritise evidence uncertainties, or ‘unanswered questions’ in a particular area - in this case LGBTQIA+ perinatal care (which means care around pregnancy, birth and the year after birth). Unanswered questions will be gathered from LGBTQIA+ people, supporters and health professionals. Then these questions will be prioritised by LGBTQIA+ people, supporters and health professionals, showing which are the most important to focus on for future research. This kind of prioritisation helps to make the case for funding future research, and helps researchers look at the most important questions.

Who is running the Priority Setting Partnership (PSP)?

The PSP is led by a steering group, made up of LGBTQIA+ people and health professionals. You can find information about who is on the steering group here. The organisations on the steering group are LGBT Mummies, LGBT Foundation, Transparent Change and UK Mutual Aid. The funding comes from the University of Oxford (Nuffield Department of Population Health Pump Priming fund and Knowledge Exchange Seed Fund), and from the British Academy’s BA/Leverhulme Small Research Grants Programme. The James Lind Alliance helps to guide the steering group through the PSP process, as independent facilitators. Click the links to read our protocol and terms of reference.

Who are the James Lind Alliance?

The James Lind Alliance (JLA) is a non-profit making initiative, established in 2004.  It brings patients, carers and clinicians together in PSPs for many different topic areas. A James Lind Alliance advisor helps the steering group to run the PSP, and chairs the final prioritisation workshop. For more information on the JLA priority setting methodology watch this short video or find out more at https://www.jla.nihr.ac.uk/.

The first step of the PSP is a questionnaire gathering unanswered questions about LGBTQIA+ people trying to get pregnant, becoming pregnant, giving birth, feeding babies and the first year after birth.

Survey takes approx 15 minutes. The survey closes at midnight on November 30th 2024.

Who We Are

Dr Jenny McLeish (she/her) is the National Perinatal Epidemiology Unit/Oxford University project lead.